Wednesday, May 14, 2014

All About My Son

Many of you reading this know my son's name, but I'm hesitant to write it on the blog. I feel I must keep it safe. Those who know his name also know his struggles, medical issues and the mystery (medically) that is my son. I'm too tired to dive into it all now, so those of you who don't know will just have to wait until I get around to writing that story. If you can't wait and we are friends or family, then you know how to message me and ask for those details.

Anyhow, my son has been making progress developmentally and we're seeing more progress know that he has two PT sessions, so one hour total instead of 30 minutes. Just yesterday I was watching him as his grandma (my mom) left to get his Aunt. As she said goodbye, his arm was moving from side to side in a controlled way. It hit me that he was waving goodbye in response. I wasn't sure. Not much later he was watching me so I said hello and waved at him. I waved my arm from side to side instead of just opening and closing it, which is what we had been trying to teach him. He copied me and smiled as I showered him with praise. I was ecstatic!

Later still I tried again and then he followed suit. I was able to show my husband and my mom. We are all so happy. Then today a thought struck me. He's been doing something similar for awhile now and I just thought it was extraneous movement because he was excited. While a part of me is so impressed that he's most likely been waving for awhile, another part of me felt really shitty for not noticing it until now. What other things have I been blind to? The more I think of it, the more my feels hurt. And they've been pretty fragile all afternoon, even before this thought struck me.

For now I will ignore that sadness and focus on the positive. My boy, who has many challenges that he's struggling to overcome, is getting stronger. He's learning more things. And while some days he can drive me absolutely batty, he will always impress me and feel me with joy. So here's to more progress as we move forward. Oh, and he also sat on his dad's belly this evening and held his head straight for almost a minute! It was exhilarating.

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